Is there a cure?

Currently, there is no known cure. But we remain hopeful that will change. The Foundation's Medical Advisory Board leads in the field of research, treatment and exploring what’s possible for ensuring our patients get the right care and support until a cure is found.

What is the treatment for GBS?

GBS in its early stages is unpredictable, so except in very mild cases, most newly diagnosed patients are hospitalized. Usually, a new case of GBS is admitted to ICU (Intensive Care) to monitor breathing and other body functions until the disease is stabilized. 

Plasma exchange (a blood “cleansing” procedure) and high dose intravenous immune globulins are often helpful to shorten the course of GBS. The acute phase of GBS typically varies in length from a few days to months, with over 90% of patients moving into the rehabilitative phase within four weeks. 

Patient care involves the coordinated efforts of a team such as a neurologist, physiatrist (rehabilitation physician), internist, family physician, physical therapist, occupational therapist, social worker, nurse, and psychologist or psychiatrist. Some patients require speech therapy if speech muscles have been affected.

How long will recovery take?

Recovery may occur over six months to two years or longer. A particularly frustrating consequence of GBS is long-term recurrences of fatigue and/or exhaustion as well as abnormal sensations including pain and muscle aches. These can be aggravated by ‘normal’ activity and can be alleviated by pacing activity and rest.

Is there a chance of recurrence?

It’s even more rare to have multiple episodes of GBS, but it can happen. Since the causes of GBS or unknown, there’s technically nothing you can do to control the possibility. But we do believe you should stay positive and focused on the recovery process and healthy living.